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Deborrah Arron died on April 14, 2002 due to complications from a bone-marrow transplant. She was a nationally acclaimed lawyer and public speaker. In 1989, she published a book Running From the Law about her experience of leaving the legal profession. She helped many lawyers experiencing career crises.

(from her obituary, Seattle Times April 18, 2002)

Jonanna Boyles

Jonanna Boyles died on January 2, 2003. She went into the hospital on December 8 and apparently was fighting a "CMV" virus. Jonanna had this "CMV" gene and the doctors were aware of it. The Bone Marrow Transplant was successful, but the "CMV" is what killed her. Those that walked the "Light the Night" walk for the Leukemia & Lymphoma Society in Seattle in September, 2002, will remember Jonanna as a bubbly person who had a very positive outlook on her disease and felt at that time that she had beat it.

If you would like to make a donation to the Hutch (as her family requested), we invite you to join us for a group donation from CBCs-R-Us Support Group. For more information, contact us.

(written by Kathleen)

Bonnie McDonald

It is with great sadness that I relay the news of the passing of Bonnie McDonald at the end of January, 2003. Bonnie was an active member of our group and an inspiration to so many of us. It's hard to imagine our group without her. She was one of the most courageous people I've ever met. Her upbeat attitude was always with her, to the end. Dick said that she went peacefully and her oldest son was with her when she passed away.

Bonnie loved angels. Her house was covered in them. Next time you see an angel, think of Bonnie.

(written by Carol)

Past Events

Fred Hutchinson Cancer Research Center to Hold Patient Conference on Marrow Failure Saturday, June 7, 2008

This was posted on the www.aamds.org website under Events --> Community events.

Fred Hutchinson Cancer Research Center to Hold Patient Conference on Marrow Failure

Dr. Joachim Deeg, a member of the AA&MDSIF Medical Advisory Board, and his colleagues at Fred Hutchinson Cancer Research Center in Seattle organized a patient conference with the broad theme of marrow failure. The conference, which was held all day on Saturday, June 7 at the Center, focused on MDS, myeloproliferative disorders and aplastic anemia.

Living with a Blood Cancer Conference in Chicago
http://mpdfoundation.org/livingwithbloodcancer.pdf May 2-4, 2008

Mayo MPD Conference in Scottsdale, Arizona February 23-25 2007

The conference was co-sponsored by Mayo Clinic and CMPD Education Foundation.
It was held at the Mayo Clinic Scottsdale, 13400 E Shea Blvd, Scottsdale, Arizona 85259 in their Ashton Taylor auditorium (concourse level) on Friday, Saturday and Sunday, February 23,24,25 2007. On Friday, there was a patient roundtable luncheon as at the 2005 conference outside of Mayo.

Light the Night for Leukemia & Lymphoma - Saturday, September 16, 2006

CBCs-R-Us support group and our families and friends were invited to participate in the "Light the Night" fund-raiser for the Leukemia & Lymphoma Society to help fund research into blood disorders.

Seattle, Washington: Myelodysplastic Syndromes and Myeloproliferative Disorders The Fred Hutchinson Cancer Research Center (FHCRC) offered this free conference for patients and their medical teams featuring several renowned hematologists. Saturday, April 29, 2006, 8:30 am - 5:00 pm, at FHCRC. To register, call the AA&MDSIF at 800.747.2820. For more information, see the event flyer: http://www.fhcrc.org/patient/support/myelo_event.pdf.

Speakers Include
Anneclaire De Roos, PhD - Fred Hutchinson Cancer Research Center
Ruben Mesa, MD - Mayo Clinic College of Medicine
Brenda M. Sandmaier, MD - Fred Hutchinson Cancer Research Center
H. Joachim Deeg, MD - Fred Hutchinson Cancer Research
Gary Gilliland, MD, PhD - Brigham and Women’s Hospital and Harvard Medical School
Azra Raza, MD - University of Massachusetts

Big Stair Climb for Leukemia on March 19, 2006

Climb to the top of the Columbia Center (formerly Bank of America Tower) in Seattle (1311 steps - 69 flights) to raise money for The Leukemia & Lymphoma Society. For more information, see the Big Climb web site.

Third Mayo Clinic MPD Conference in Scottsdale, AZ. February 25-27, 2005.

Big Climb for Leukemia & Lymphoma Society - March 21, 2004

Two CBCs-R-Us members participated in the Big Climb for Leukemia March 21, 2004 in Seattle. We climbed to the top of the Bank of America Tower in Seattle (1311 steps - 69 flights). The Leukemia & Lymphoma Society also displayed our MDP brochures and cards. For more information, see the Big Climb web site.

Light the Night for Leukemia & Lymphoma - Saturday, September 20, 2003

CBCs-R-Us support group and our families and friends participated in the "Light the Night" fund-raiser for the Leukemia & Lymphoma Society to help fund research into blood disorders.

MPD Conference in Arizona - April 11-13, 2003

For information about this valuable conference for doctors and patients, contact:

Joyce Niblack JNiblack@aol.com,
Patient coordinator for 2003 Mayo Scottsdale MPD Conference

Patient & Family Support Group Psychoeducational Series - April, 2003

Presented by the Leukemia & Lymphoma Society and Overlake Hospital Cancer Center. All events are 7-8:30 pm at Overlake Hospital Cancer Resource Center 1135 116th Ave NE, Bellevue, WA.

April 7 - Diagnosis & Treatment
April 14 - Fatigue
April 21 - Communication with Health Care Team, Family & Friends
April 28 - Work, Financial & Insurance Issues

For more information, contact:

Lauren Slovic, MSW, Patient Services Manager
Leukemia & Lymphoma Society
Slovicl@wa.leukemia-lymphoma.org or call 1-888-345-4572 x 123

Big Climb for Leukemia & Lymphoma Society - March 2, 2003

Several CBCs-R-Us members participated in the Big Climb for Leukemia & Lymphoma Society March 2, 2003 with the CBCs-R-Us team. We climbed to the top of the Bank of America Tower in Seattle (1311 steps - 69 flights). We were joined by a group of about a dozen parents and children from the Seattle Buddhist Temple Dharma School who decided to join the event after hearing about MPDs from the father of one of the teens in the Dharma School, who suffers from Essential Thrombocythemia.

Light the Night for Leukemia & Lymphoma - September 20, 2002

Approximately 30 members of our support group and our families and friends participated as the CBCs-R-Us team on "Light the Night" fund-raiser for the Leukemia & Lymphoma Society, raising several thousand dollars to help fund research into blood disorders. After the walk around Green Lake (it was a beautiful night!), we went for pizza at Olympia Pizza.

We made special white sweatshirts with our new logo: