Resources

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Patient Support

Keep track of your Complete Blood Count results using an Excel spreadsheet provided by one of our support group members:
See: CBC Record or CBC Record Example (Excel, opens in a new window)

Information about our Support Group for Doctors

MPD patients need support. We encourage you to help us get the word out about our CBCs-R-Us support group. Anyone is welcome to attend our meetings. Here is a brochure you can download and print in your office to distribute to any of your patients who have been diagnosed with an MPD. It includes the URL to this website:

MPD Brochure (Adobe Acrobat pdf file, opens in new window)
(Tip: Print this back-to-back, landscape in color, if possible, then fold in thirds.)
MPD Cards (Adobe Acrobat pdf file, opens in a new window)
(Tip: Print in color, if possible, then cut at the four horizontal lines, and in the vertical middle -- 4.25 inches -- to create six cards.)

Related Sites

Independently produced by Carden Jennings Publishing, BLOODLINE is a leading resource for hematology education and information. BLOODLINE offers a variety of content, including peer-reviewed journals, original submissions, an Image Library, and multimedia education. See http://www.bloodline.net/ or call 434-817-2000, x193.
Seattle Cancer Care Alliance brings together the best of three internationally renowned cancer care institutions: Fred Hutchinson Cancer Research Center, UW Medicine, and Children's Hospital and Regional Medical Center. SCCA offers a variety of treatment options, designed from the latest research findings, for malignant and non-malignant diseases. See http://www.seattlecca.org/.

Presentation Resources

Many of the speakers who have presented at our quarterly meetings have provided us with photocopied articles, brochures, and other information. Feel free to contact us at mpdinfo@scn.org if you see something that would be helpful to you. (Use the MPD-000 ID number to indicate which resource you're interested in.)

presented by Dr. John Harlan, UW Hematology 1/21/01

MPD-001: The Myeloproliferative Disorders.
By Virginia Broudy, M.D. (speaker) and Tai Shanafelt, M.D. (handout). Resident Teaching Conference, January 11, 2001 at UW.

MPD-002: CBC Sample (with ranges)

MPD-003: Risk-Based Management in Essential Thrombocythemia.
By Ayalew Tefferi at American Society of Hematology reported in Hematology 1999, pp. 172-177.

MPD-004: Personal Approach to Therapy for Thrombocythemia.
By R.Hoffman in Hematology 3^rd Edition 2000, Chapter 64.

MPD-005: What is the Role for Transplantation or Experimental Therapy for Agnogenic Myeloid Metaplasia?
By Jeanne E. Anderson at American Society of Hematology reported in Hematology 1999, pp. 185-191.

MPD-006: Therapy for Agnogenic Myeloid Metaplasia.
By R.Hoffman in Hematology 3^rd Edition 2000, Chapter 63.

MPD-007: Algorithm for Management of Patients with Polycythemia Vera.
By R.Hoffman in Hematology 3^rd Edition 2000, Chapter 61.

MPD-008: Myeloproliferative Disorders. (PV
By Steven M. Fruchtman, Josef T. Prchal, and Andrew I. Schafer at American Society of Hematology reported in Hematology 1998, pp. 215-230.

MPD-009: Assessment and Management of Cancer-Related Fatigue.
By Russell K. Portenoy and Christine Miaskowski in Principles and Practice of Supportive Oncology, edited by Ann Berger et al., chapter 6, pp. 109-118.

MPD-010: Cancer-Related Fatigue and its Impact on Patients’ Quality of Life.
By Gregory A. Curt, MD in Anemia in Oncology, pp. 5-8.

MPD-011: CancerNet - Fatigue (PDQ ®) Supportive Care- Patients
http://cancernet.nci.nih.gov/ (Search for “Fatigue”)

MPD-012: OncoTip of the Day: Fatigue and Cancer.
http://www.oncolink.org/support/tips/tip15.html

MPD-013: ICD-10 Criteria for Cancer-Related Fatigue.
Dr. John Harlan, UW Hematology

MPD-014: Cancer-Related Fatigue
National Comprehensive Cancer Network, Inc. Practice Guidelines version 2000

presented by Fran M. Pinault ND, LAc (4/22/01)

MPD-015: Naturopathic Resources

An Overview of Naturopathic Medicine and Traditional Chinese Medicine

Naturopathic Doctors Use Many Therapies to Stimulate the Innate Healing Potential

Acupuncture and Oriental Medicine Have Elegant and Ancient Methods to Support the Vital Energy of the Body

An Overview of the Production of Blood Cells and Origins of the Myeloproliferative Disorders

Alternative Medical Approaches to Myeloproliferative Diseases

presented by Kelly Morrow, MS, RD (Registered Dietician) (4/22/01)

MPD-016: Nutrition Resources
Nutrition for Myeloproliferative Disorders

presented by Randy Mentzer, Rph (1/13/02)
(owner of Randy's Compounding Pharmacy & Nutrition Centers

MPD-017: Back to the Future with Customized Medications
Brochure about extemporaneous compounding

presented by Dr. Jianxin Huang, L.Ac. (Licensed Acupuncturist) (1/13/02)

MPD-018: Questions and Answers about Acupuncture: Long Life
Brochure about acupuncture